Parkinson's Disease

iWear Study

paco — Wed, 03 May 2023 18:47:50 +0000

iWear Study

paco Wed, 05/03/2023 - 13:47 ProjectiWear Study /research/labs/kteam/projects/iwear-studyproject-type--parkinsons-disease

Survey on Patient Preferences for Remote Monitoring Using Wearable Health Devices

In collaboration with the Medical College of Wisconsin, the purpose of this study is to develop strategies to include wearable devices into healthcare to remotely monitor health. To participate, we are looking for people who are age 65 years or older and have one of the following conditions: a) Cardiometabolic disease b) Neurological disorder c) Cancer. The survey will be in English so being comfortable with reading and understanding English is required to complete the survey. For more information, refer to the study flyer below or click this link.

Study Flyer

Summary

Data indicates older adults' healthcare costs average about 3 times greater than those of the typical working adult. In addition to an increased prevalence of chronic disease, functional decline and functional limitations account for 64% of emergency department visits in adults 65 and older. With decreasing time providers have to spend with patients, integrating wearable activity monitors (such as an Apple Watch or Fitbit) into the healthcare setting for older adults to be used to remotely monitor and assess (1) changes to patients functional status, (2) adherence to rehabilitation programs, and (3) early referral and intervention when clinically significant changes are detected. Upon implementation, digital biomarkers can be defined and deployed to reduce risks associated with functional limitations and improve effectiveness of clinical care among the older adult population. However, little is known about how to efficiently and effectively implement wearable devices into an older adult healthcare setting, such as the needs and preferences of the target population for accessing and using these devices.

Therefore, we propose to use a patient-centered approach to determine the needs and preferences of older adults to integrate wearable devices into a healthcare setting. Completion of this study will provide the knowledge necessary to design implementation strategies for integration of wearable devices into healthcare as a means to remotely monitor older adults health in between provider office visits.

If interested in learning more about the collaboration with the Medical College of Wisconsin, click here to view the profile of Dr. Whitney Morelli, PhD,

Miriam Rafferty PT, DPT, PhD

Director of Implementation Science, Research Scientist II Assistant Professor, Department of Physical Medicine and Rehabilitation, Department of Medical Social Sciences, Department of Psychiatry and Behavioral Science

Paulo Aco, MS

Project Coordinator

May 03, 2023

Posted By KTEAM

Project Type

Parkinson's Disease, Cancer, Neurodegenerative Disease, Implementation Science, Health Services Research

Facets for Clinicians and Researchers

Research Labs & Centers

Remote Therapeutic Monitoring

paco — Thu, 13 Apr 2023 20:00:35 +0000

Remote Therapeutic Monitoring

paco Thu, 04/13/2023 - 15:00 ProjectRemote Therapeutic Monitoring /research/labs/kteam/projects/remote-therapeutic-monitoringproject-type--parkinsons-disease

Recruitment

Participants must be receiving outpatient or day rehab physical therapy (PT) at Shirley Ryan ��о��, between the ages of 18-89 years, have a smartphone, and have a diagnosis of one of the following conditions: Parkinson’s disease, Multiple Sclerosis, stroke, post-Covid, lower extremity pain, back pain, or mild TBI/concussion. Study participants are able to use their personal Apple Watch, Fitbit or Garmin devices. Those who wish to participate, but do not own a device are provided with a Garmin device to use. Participant recruitment is currently closed. However, if you are still interested in the study, refer to the study contact information below to be contacted by the research team.

If you meet these eligibility criteria and are interested in participating in the study, you can contact Kevin Smaller at (312)238-8326, or ksmaller@sralab.org, or refer to our study flyer.

Study Flyer

Summary

Exercise and other physical activities are effective physical therapy interventions for people with neurologic disorders, especially when it’s at a high intensity. Unfortunately, there’s currently no easy way for physical therapist to assess how well their patients are following along with the at-home exercise programs they’ve been given.

The popularity of wearable devices like smart watches and fitness trackers have provided an opportunity for physical therapists to gain more objective information about their patient’s everyday exercise and physical activity. Recently, medical facilities have begun using online platforms to secularly share that information with their health care providers. These services, called Remote Therapeutic Monitoring systems, are cloud-based platforms that enable clinicians like Physical Therapists to better guide their patient’s adherence to at home health recommendations.

The purpose of this pilot investigation is to determine the helpfulness, feasibility, and effectiveness of using a Remote Therapeutic Monitoring system to help physical therapists assess their patient’s adherence to their prescribed physical activity and exercise plans and assist clinical care, over the course of 6 months.

Our Remote Therapeutic Monitoring System

We’ve partnered with Datos Health to provide a group of Shirley Ryan ��о�� Physical Therapists a Therapeutic Monitoring platform for participating patients. Our Datos platform shares the patients’ daily step count, recorded workouts and heart rate during workouts with their treating therapist. This allows the therapists to stay up to date on their patient’s adherence to their prescribed activity goals and reach out to provide guidance. The platform also provides the patients with this activity data relative to their personalized goals. For example, a patient can see how much time during their aerobic exercise they spent in their target heart range zone and how much time was spent below or above it.

To preview the Datos platform and its features, refer to the images below.

Datos Patient View

Datos Therapist View

Resources for Current Participants

Coming soon!

Miriam Rafferty PT, DPT, PhD

April 13, 2023

Posted By KTEAM

Project Type

Parkinson's Disease, Stroke, Health Services Research, Implementation Science

Facets for Clinicians and Researchers

Research Labs & Centers

Digital Health Technology for Physical Therapy

LSnyder — Mon, 08 Feb 2021 20:57:28 +0000

Digital Health Technology for Physical Therapy

LSnyder Mon, 02/08/2021 - 14:57 ProjectDigital Health Technology for Physical Therapy /research/labs/kteam/projects/digital-health-technology-physical-therapyproject-type--parkinsons-disease

Summary

There is strong evidence that increased exercise is associated with slower declines in mobility and quality of life among people with Parkinson’s. However, there are also several barriers to starting and maintaining exercise. Recent studies have shown that clinicians can use digital health technology and behavior change interventions to help people with Parkinson’s to increase their exercise. This project aims to facilitate digital health technology use into physical therapy (PT) practice for people with early Parkinson’s disease.

As part of the study we will develop, disseminate, and test strategies that can improve the use of digital health technology and behavior change interventions in PT and real-world practice. Below you will find several of these resources developed:

Resources for People with Parkinson's

Difference between Exercise and Physical Activity

Tips to Progress Aerobic Exercise

Tips to Progress Balance Training

Tips to Progress Strength Training

Exercise Sustainment for People with Parkinson's

Step and Intensity Goal Setting

Technology Goal Setting

Partner Technology

Resource for Physical Therapists

Exercise Sustainment for Clinicians

Clinician Technology Goal Setting

Preliminary Results

BARRIERS & FACILITATORS

In the initial phase of study, we conducted interviews with people with Parkinson’s disease, physical therapists, and technology stakeholders. The purpose of this phase was to describe barriers and facilitators to using digital health technology in PT.

Results of the interviews suggest that clinicians should simplify digital health technology in PT to increase use by people with PD. Recommendations for PT include (1) identifying user-friendly features in apps, (2) gathering resources for both clinicians and patients, (3) using individualized approaches, and (4) engaging family, social, and clinical support.

The poster below depicts these results and provides some specific quotes from participants:

Barriers & Facilitators Poster

IMPLEMENTATION FIDELITY

We wanted to explore how physical therapists (PTs) can use digital health technology (DHT) and behavior change approaches to help PwP meet exercise goals. We audited the initial session documentation of 30 historic control and 30 participants in the study. All of these sessions occurred in three outpatient rehabilitation clinics with individuals involved in the program for people with early stage Parkinson’s disease.

The PTs had 100% adherence to documenting self-reported baseline exercise for PwP. Implementation aimed to promote the use of DHT and a behavior change approach for exercise adherence in a group of PwP. Implementation strategies included interactive training, facilitation, documentation guidance and clinical resources/education for use with patients.

Trained PTs were more likely to document DHT as a tool for exercise monitoring after training, especially smart phones, fitness apps and wearables. These PTs were also more likely to document detailed information regarding various types of exercise such as aerobic & strength training. See link to the poster for more information below.

Implementation Fidelity Poster

Accelerating Physical Therapy Exercise Monitoring through Digital Health Technology for People with Parkinson’s

The purpose of this phase of the study was to explore if physical therapists (PT) can promote digital health technology (DHT) use in people with Parkinson’s (PwP) who were referred to an early intervention, low-dose consultative model of physical therapy. We hypothesized that increased DHT use would be associated with improved self-report of exercise and physical function.

We enrolled 33 PwP over a 15-month period. Patients completed surveys and functional outcome measures at baseline and 6-months. PwP received an initial consultative PT assessment, follow-up DHT support as needed by a research facilitator, and a follow-up research evaluation at 6 months. PwP and PTs completed exit interviews about their experiences.

Recorded frequency and intensity of aerobic and strengthening exercises increased in PT documentation. The number of PwP reporting using DHT ≥5 days/week increased from 11 to 18 and function remained stable, but there was no significant change mean minutes of exercise per week. PwP exit interviews suggest higher adoption of DHT for those who were initially more comfortable or eager to learn technology. PT exit interviews suggest that they value using DHT and scaled DHT recommendations to other patient populations.

These findings suggest that PT education and engagement can positively impact patient-reported use of DHT and facilitate increased exercise in PwP. With this intervention delivery, patients remained functionally stable through 6 months.

Incorporating DHT into physical therapy practice may be valuable to improve exercise adherence for PwP.

For more information, click on the abstract document below that was accepted for a poster presentation at the 2024 APTA CSM.

2024 APTA CSM (Abstract)

Additional KTEAM Projects

Coming soon!

Miriam Rafferty PT, DPT, PhD

Bridget Fowler King, PT, DPT, APTA

Physical Therapist, Physical Therapist Clinical Research Assistant

Monica Hendricksen, PT, NCS

Physical Therapist Clinician and Researcher

Kevin Smaller

Project Coordinator

April 07, 2023

Posted By KTEAM

Project Type

Parkinson's Disease, Activity & Participation, Health Services Research

Facets for Clinicians and Researchers

Research Labs & Centers

COMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease

Anonymous — Mon, 05 Oct 2020 18:23:14 +0000

COMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease

Anonymous (not verified) Mon, 10/05/2020 - 13:23 ProjectCOMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease /research/labs/max-nader-rto/projects/complete-wearable-airbag-system-prevent-fallsproject-type--parkinsons-disease

This study is complete and is no longer recruiting subjects.

Overview

People with Parkinson's disease may fall due to issues with gait and balance or weak muscles. Falling can result in serious injuries, such as a broken hip. After a fall, people may worry about falling again, resulting in less walking or exercising and a tendency to stay home instead of running errands or meeting friends. Personal airbags may reduce this worry and prevent additional injury. Smart airbags worn under clothes can sense when the user is falling, inflate quickly to cushion the hip and then gently deflate under body weight to reduce the impact of falling.

This pilot study will determine if using a novel smart airbag design works and if using airbags is realistic and helpful for people with Parkinson's. We expect that a smart, wearable airbag system that can accurately predict falls and quickly inflate will reduce hip fractures in people with Parkinson's. We also expect that wearing the airbags will make people less scared of falling, so they will be more active within their home and community.

This study design involves two steps: (1) improving the airbag system so it can accurately detect falls in people with Parkinson's and (2) testing whether the system reduces injuries caused by falling. A group of 25 people with Parkinson's will wear the airbag system for six months, while another group of 25 will not. Everyone will carry a smartphone that can detect and record falls and measure activity levels. Information from the phones will tell us if (1) the airbags reduced the number of hip injuries from falls, and (2) if people wearing the airbags were more active.

The next step will be to have more people test the airbag system to confirm the results from this initial trial and to see if there are any negative effects from using the airbags. If further studies are successful, we will seek FDA approval to sell the system in the US.

Subject Population

Diagnosed with Parkison’s Disease or neurlogic disorders with high fall risk
Ages 18-85 years
Able to sit unsupported, walk at least with an assistive device, and be able to follow a three-step command
Able to carry and use a smartphone

Study Personnel

Arun Jayaraman, PT, PhD

Executive Director, Technology & Innovation Hub (tiHUB); Director, Max Näder Center for Rehabilitation Technologies & Outcomes Research

Funding Source

The Michael J. Fox Foundation for Parkinson's Research

Participation

Want to participate in this study? Fill out this interest form.

November 29, 2018

The Michael J. Fox Foundation for Parkinson's Research Posted By Sheila Burt

Project Type

Parkinson's Disease, Gait, Biomedical Engineering

Facets for Clinicians and Researchers

Research Labs & Centers

COMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation

Anonymous — Wed, 30 Sep 2020 19:47:24 +0000

COMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation

Anonymous (not verified) Wed, 09/30/2020 - 14:47 ProjectCOMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation /research/labs/max-nader-rto/projects/complete-detecting-early-signs-pd-videosproject-type--parkinsons-disease

This study is complete and is no longer recruiting subjects.

Overview

Parkinson’s disease (PD) begins well before movement symptoms appear, and many people have a long journey to diagnosis. No objective test for Parkinson’s exists. If we are able to detect the disease at an early stage, we might be able to intervene and prescribe interventions that will slow progression of the disease and help people maintain their quality of life.

We believe that smart computer programs will allow us to detect early signs of PD from videos of people doing normal activities, such as drawing, walking, reaching for a cup or folding towels. We may also be able to predict the stage of disease and see how it is progressing.

We plan to use videos of people with PD doing different things to develop sophisticated computer programs that can detect specific movement patterns that are only seen in people with PD. We will then see how well our computer programs can diagnose early PD, compared with medical and clinical professionals. Our system may enable early detection of PD. Those people could then receive assistance and medication — when available — to delay the progression of the disease.

In the future, we plan to use slightly more sophisticated cameras that can capture more information than normal video. This will help us improve our computer programs and ensure the privacy of the people we record.

Study Personnel

Arun Jayaraman, PT, PhD

Executive Director, Technology & Innovation Hub (tiHUB); Director, Max Näder Center for Rehabilitation Technologies & Outcomes Research

Funding Source

The Michael J. Fox Foundation for Parkinson's Research

November 29, 2018

The Michael J. Fox Foundation for Parkinson's Research Posted By Sheila Burt

Project Type

Parkinson's Disease, Artificial Intelligence

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Research Labs & Centers

Parkinson’s Works: Peer Support Group and Education Series

Anonymous — Thu, 06 Aug 2020 19:24:38 +0000

Parkinson’s Works: Peer Support Group and Education Series

Anonymous (not verified) Thu, 08/06/2020 - 14:24 ProjectParkinson’s Works: Peer Support Group and Education Series /research/labs/kteam/projects/parkinsons-works-peer-support-groupproject-type--parkinsons-disease

Vocational Rehabilitation has been suggested to help people with Parkinson’s disease (PD) with job retention. Shirley Ryan ��о�� Vocational Rehabilitation counselors provide specialized counseling on strategies to retain current employment or obtain new employment in people with disabilities or medical conditions. However, Vocational Rehabilitation services are hard for people with Parkinson’s disease to access.

This peer support group and education series expands the availability of Vocational Rehabilitation to people with PD who would otherwise not be able to receive services at Shirley Ryan ��о�� due to living out of state or other travel barriers. Meetings are conducted over Zoom twice a month. Quarterly, expert speakers will present on topics such as disclosure, ADA and employee rights, and other employment-related topics. Parkinson’s Works meetings are moderated by a Vocational Rehabilitation Counselor.

Support Group Details

When: 1st and 3rd Friday of each month

Time: 4:40-5:40 pm

Where: Virtually via Zoom

2025 Meeting Dates

June 2025: 6th & 20th

July 2025: 18th

August 2025: 1st & 15th

Register

Register for Parkinson’s Works

Contact Eric Espinoza at eespinoz02@sralab.org for more information.

Smartphone and Computer Adaptation Handouts (English):

There are various options to make using your smartphone easier to use when you have tremors or stiffness due to Parkinson’s Disease. Some small adjustments on your phone or computer may result in your feeling much more confident in your ability to control your device.

Download the instructions for the Android or iPhone, and Mac or Windows below.

Android Smartphone Education Sheet

iPhone Smartphone Education Sheet

Apple Mac Education Sheet

Windows PC Education Sheet

Smartphone and Computer Adaptation handouts (Spanish):

Android Smartphone Education Sheet in Spanish

iPhone Smartphone Education Sheet in Spanish

Apple Mac Education Sheet in Spanish

Windows PC Education Sheet in Spanish

March 22, 2022

Project Type

Parkinson's Disease

��о�� Reference

Strength + Endurance Lab

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Facets for Clinicians and Researchers

Research Labs & Centers

Retrospective Interdisciplinary Care for Parkinson's Disease

Anonymous — Thu, 11 Jul 2019 18:57:47 +0000

Retrospective Interdisciplinary Care for Parkinson's Disease

Anonymous (not verified) Thu, 07/11/2019 - 13:57 ProjectRetrospective Interdisciplinary Care for Parkinson's Disease /research/labs/kteam/projects/retrospective-interdisciplinary-care-parkinsons-diseaseproject-type--quality-improvement

Clinical practice guidelines recommend interdisciplinary rehabilitation for people with Parkinson’s disease (PD) by a team including occupational therapy (OT), speech therapy (ST), and physical therapy (PT). In early PD, proactive rehabilitation includes (1) baseline evaluations, (2) exercise prescription and self-management advice, and (3) addressing early impairments in walking, balance, voice, dexterity, and occupational performance. The purpose of this study is to describe the delivery patterns, patient characteristics, and baseline performance of people referred to proactive rehabilitation at Shirley Ryan ��о��.

Description of Study Activities

Retrospective data from electronic medical records were extracted manually. Patients were included if they were referred to the proactive rehabilitation program for PD.

Preliminary Results

The first stage of this study focused on the utilization of occupational therapy (OT). Descriptive statistics were used to characterize patient demographics and OT measures including basic activities of daily living (BADL), instrumental activities of daily living (IADL), nine-hole peg test, grip and pinch strength. A total of 72 patients were evaluated in the following clinical combinations: 17 PT/OT/ST, 8 ST/PT, 3 OT/PT, 2 OT/ST, 0 OT, 4 ST, and 38 PT. 22 patients were seen in OT (73% male, 68 ± 11 years old). 77% of these individuals were in HY stage 1-2, and 73% were within 5 years of diagnosis. Most individuals (91%) reported requiring increased time for at least one BADL. Writing and keyboarding were problems for 45% and 32% of individuals, respectively. Average nine-hole peg test values were 33 seconds (L) and 34 seconds (R). Average grip and pinch strength measures were 61.7 lbs. (L), 61.8 lbs. (R), 17 lbs. (L) 17.8 lbs. (R), respectively. Eighteen patients attended one 90 minute session, 3 patients completed 1 additional visit, and 1 patient completed 5 additional visits. OT is the least common area of proactive rehabilitation. While the majority of people evaluated were relatively early in their disease, they presented with impairments in dexterity and hand strength.

Dissemination

Poster presentation of preliminary results

July 11, 2019

Project Type

Quality Improvement, Parkinson's Disease, Health Services Research

��о�� Reference

Strength + Endurance Lab

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Research Labs & Centers

Proactive Physical Therapy for People with Parkinson's Disease: A Knowledge Translation Research Approach

Anonymous — Thu, 11 Jul 2019 18:17:52 +0000

Proactive Physical Therapy for People with Parkinson's Disease: A Knowledge Translation Research Approach

Anonymous (not verified) Thu, 07/11/2019 - 13:17 ProjectProactive Physical Therapy for People with Parkinson's Disease: A Knowledge Translation Research Approach /research/labs/kteam/projects/proactive-physical-therapy-people-parkinsons-disease-knowledge-translation-research-approachproject-type--parkinsons-disease

Parkinson's disease causes progressive mobility deficits associated with decreased quality of life and increased mortality. European clinical practice guidelines recommend physical therapy (PT) for people with Parkinson’s disease (PD) soon after diagnosis to provide education, physical activity advice, and individualized interventions when needed. However, PT is frequently under-utilized early and individuals aren't referred until gait and balance problems occur. The purpose of this administrative case study is to present the application of a proactive PT (PAPT) approach, to optimize participation in evidence-based exercise for PD, using implementation frameworks for the (1) implementation process, (2) determinants of implementation success, and (3) implementation evaluation.

Description of Study Activities

The PAPT program targets people with early stage PD before the onset of significant gait and balance dysfunction. The program uses a shared decision-making model to promote long-term maintenance of independent exercise. The Knowledge-to-Action Framework was used by champions to assess gaps between knowledge and current practice as well as synthesize current knowledge regarding exercise in PD. Implementation barriers were addressed using the Consolidated Framework for Implementation Research.

The PAPT program was initiated in January 2016 and evaluated using the RE-AIM (Reach, Effectiveness, Adoption, Implementation, Maintenance) framework with mixed methods. Project 1 has been completed and accepted for publication.

A second cycle through the Knowledge-to-Action Framework cycle was initiated in 2018 related to the spread and sustainment of the PAPT program through a regional rehabilitation system of care. The analyses are underway.

Project 1 Results

In the program’s first year, 38 people were referred, 28 were evaluated, and 20 participated in 6 month program evaluation. After the first session, individuals followed 1 of 4 care paths to provide individually tailored intervention. Following PAPT, the number of participants reporting regular participation in aerobic, strengthening, flexibility, and balance exercise increased. Participants reported a median of 140 of aerobic exercise per week. Implementation barriers included location, insurance coverage, and difficulty scheduling long-term follow up visits. Participants reported physical and emotional benefits of the program. Referral rates increased from targeted referral sources by 55-163%.

Project 2 Preliminary Results

In the program’s first year, 26% of referred individuals (10 of 38) did not attend the urban program due to barriers due to lack of value of the program given interest, transportation, or cost barriers. During the first year of program expansion, our PTs reached 61 patients, and we are on target for additional growth in 2019. Key barriers in suburban programmatic development include slow referral growth, staff turnover, and scheduling communication. Unique benefits of implementing a program the smaller clinical settings include completion of patient-reported outcome measures, better consistency of therapists with smaller programs. The most potent facilitator of program sustainment were administrative and leadership support. Knowledge broker and champions collaborated to address barriers to develop a program at each site.

Would you like to be seen by a physical therapist for proactive PT?

Early Intervention for PD Flyer

Dissemination

Poster presentation of Project 1 (first year)

July 11, 2019

Project Type

Parkinson's Disease, Health Services Research, Implementation Science

��о�� Reference

Strength + Endurance Lab

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Facets for Clinicians and Researchers

Research Labs & Centers

COMPLETE: Development and Implementation of a Feasible Outcome Measure Battery for Community-Based Exercise Professionals

Anonymous — Fri, 05 Jul 2019 14:53:57 +0000

COMPLETE: Development and Implementation of a Feasible Outcome Measure Battery for Community-Based Exercise Professionals

Anonymous (not verified) Fri, 07/05/2019 - 09:53 ProjectCOMPLETE: Development and Implementation of a Feasible Outcome Measure Battery for Community-Based Exercise Professionals /research/labs/kteam/projects/development-and-implementation-feasible-outcome-measure-battery-community-based-exerciseproject-type--implementation-science

Various types of community-based exercise exist for people with PD with differences in availability due to geographic location, appropriately trained professionals, and facility space. Many people with PD and their exercise leaders would like to know how these community exercise programs are helping their physical function. The purpose of this study is to develop a testing battery that would allow for community exercise professionals to better understand the impact of their classes.

Aims

(1) Develop a feasible test battery that can be administered in a short time by community exercise leaders and easily understood by participants with Parkinson's disease (PD) and develop a secure platform to tract the progress and outcomes of people with PD doing exercise in the community.

(2) Apply the measurement plan twice over a 2-4 month time frame to people with PD in exercise classes in urban, suburban, and rural areas.

(3) Use the battery for quality improvement of exercise classes by providing feedback to course instructors and participants with PD.

Description of Study Activities

Through this project we aim to reduce the number of tests to improve efficiency of tests chosen so tests take no more than 20 minutes to complete, and/or can be completed in a group setting. After developing the test battery, we will train necessary personnel on how to conduct the test in an efficient manner. The test battery will then be consistently administered multiple times over a 6-month period across the 15 core program classes, as well as additional classes and sites that are recruited and identified. Upon completion of the testing, the exercise professionals will use the data for quality improvement. We will determine if there is a differential benefit to the classes offered and/or if the classes targeted the area of exercise that was intended. Upon completion of this project, we will create educational tool and disseminate our findings and test battery to exercise professionals across the Chicago-land area using the Parkinson's Foundation outreach network.

Preliminary Results

Over the past year, we have conducted semi-consistent testing of a variety of outcome measures for people who attend one-on-one functional fitness appointments and/or PD specific classes.

The benefits of our pilot program are evidenced by participants and their care partners who stated: (1) "Thanks for your detailed and positive reports on [husband's] progress; we're both delighted, of course!" (2) "My husband is happy to hear your report of his work with you, and your good record-keeping on his testing results is also helpful." (3) "Having regular testing shows me that coming here, I'm not regressing or maintaining, it's [exercise] actually helping me improve. It keeps me optimistic about my future, because these testing numbers are showing me I am beating the odds."

The consistency of the testing also allows our exercise physiologists to tailor participants' workout structures based on changes in outcome measures, and then specifically target different areas of exercise (such as balance, strength and/or aerobic) leading to better improvement and/or maintenance.

July 05, 2019

Project Type

Implementation Science, Parkinson's Disease

��о�� Reference

Strength + Endurance Lab

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COMPLETE: Processes to Increase Exercise Adherence and Sustainment in People with Parkinson's Disease

Anonymous — Wed, 26 Jun 2019 16:05:26 +0000

COMPLETE: Processes to Increase Exercise Adherence and Sustainment in People with Parkinson's Disease

Anonymous (not verified) Wed, 06/26/2019 - 11:05 ProjectCOMPLETE: Processes to Increase Exercise Adherence and Sustainment in People with Parkinson's Disease /research/labs/kteam/projects/exercise-adherence-and-sustainmentproject-type--implementation-science

Previous research has shown that exercise can slow declines in Parkinson’s disease (PD). However, barriers to exercise are significant among people with PD. This study utilizes a mixed methods approach to identify factors and life-changes associated with changes in exercise patterns among people with PD. The final products of this study include resources developed to help people with PD sustain their exercise.

Aims

(1) Identify disease-related factors associated with people who increase their exercise and people who decrease their exercise.

(2) Identify life changes and processes associated with exercise increases and decreases.

(3) Develop an implementation toolbox to facilitate exercise adherence and sustainment for people with PD.

Description of Study Activities

Using data from the Parkinson’s Foundation Quality Improvement Initiative (PF-QII) we categorized participants into “exercise increasers” and exercise decreasers.” We compared groups’ measures of mobility, quality of life, hospitalization, and falls. We then conducted phone interviews on a subset of participants from Northwestern to assess personal factors that influence the ability to increase and sustain exercise.

Results

A change of 1.5 hours per week was identified as being associated with better health for increased exercise, and poorer health for decreased exercise. Overall, exercisers are younger, more recently diagnosed, and healthier. However, scores of PD-specific health related quality of life, assessed by the PDQ-39, significantly worsened in exercise increasers compared to decreasers.

Qualitative data from interviews suggests that people with PD rely heavily on their family and friends to trigger and support increasing exercise.

Dissemination

See abstract of presentation of results here

June 26, 2019

Posted By Laura Stoff

Funding:

Davis Phinney Foundation for Parkinson's and Parkinson's Foundation

Project Type

Implementation Science, Quality Improvement, Parkinson's Disease, Health Services Research

��о�� Reference

Strength + Endurance Lab

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Facets for Clinicians and Researchers

Research Labs & Centers

Parkinson's Disease

iWear Study

iWear Study

iWear Study

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Survey on Patient Preferences for Remote Monitoring Using Wearable Health Devices

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Mentioned Profile

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Facets for Clinicians and Researchers

Remote Therapeutic Monitoring

Remote Therapeutic Monitoring

Remote Therapeutic Monitoring

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Resources for Current Participants

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Facets for Clinicians and Researchers

Digital Health Technology for Physical Therapy

Digital Health Technology for Physical Therapy

Digital Health Technology for Physical Therapy

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Resources for People with Parkinson's

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Resource for Physical Therapists

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Preliminary Results

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BARRIERS & FACILITATORS

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IMPLEMENTATION FIDELITY

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Accelerating Physical Therapy Exercise Monitoring through Digital Health Technology for People with Parkinson’s

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Additional KTEAM Projects

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Facets for Clinicians and Researchers

COMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease

COMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease

COMPLETE: Wearable Airbag Technology to Mitigate Falls in Individuals with Parkinson’s Disease

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COMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation

COMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation

COMPLETE: Assessment and Monitoring of Neuromotor Function through Advanced Dynamic Pose Estimation

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Overview

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